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World Wide Resources Stroke Prevention |
Disclaimer: The following links are provided as a service to our users. This link does not imply endorsement or support of any programs or organizations. The Sickle Cell Information Center sponsors are not responsible for the content of the individual organization home pages. Click on a category below or scroll down:
Health Care Providers, Patients and Families, Kid Friendly, Organizations, New Born Screening - Genetics, Teachers and Students, Bone Marrow Transplant, Cord Blood - Stem Cell, Incidence and distribution, Pain Management, Stroke prevention - Transfusion, Other medical sites
American Acadamy of Pediatrics article :Health Supervision for Children With Sickle Cell Diseases and Their Families at http://www.aap.org/policy/01564.html
Iron Overload and Chelation Therapy Information from The Children's Hospital at Oakland at http://www.thalassemia.com/transfusion/overload.shtml Chelation Therapy at http://www.thalassemia.com/transfusion/chelation.shtml
The Clinical Trials web site at http://clinicaltrials.gov/ct/gui - The U.S. National Institutes of Health, through its National Library of Medicine, has developed ClinicalTrials.gov to provide patients, family members and members of the public current information about clinical research studies.NIH Clinical Trials for Sickle Cell Currently ongoing at http://clinicaltrials.gov/ct/gui/c/b/action/FindCondition?ui=D000755&recruiting=true
The Medical College of Georgia STOP Study Web Site at http://www.neuro.mcg.edu/cvhp/STOP/index.html - The Stroke Prevention Trial in Sickle Cell Anemia, or STOP, was a randomized trial which proved that periodic (approximately monthly) blood transfusions prevent strokes in children with sickle cell anemia who had not yet had a stroke. This site has links to Centers that can perform TCD screening and courses for TCD screening