World Wide Resources New Born Screening

World Wide Web Sites

Disclaimer: The following links are provided as a service to our users. This link does not imply endorsement or support of any programs or organizations. The Sickle Cell Information Center sponsors are not responsible for the content of the individual organization home pages. Click on a category below or scroll down:

Health Care Providers,  Patients and Families, Kid Friendly, Organizations, New Born Screening - Genetics, Teachers and Students, Bone Marrow Transplant, Cord Blood - Stem Cell, Incidence and distribution,  Pain Management, Stroke prevention - Transfusion, Other medical sites

New Born Screening- Genetics Web Sites 

Washington State New Born Screening Information http://www.doh.wa.gov/EHSPHL/PHL/Newborn/reports.htm

 

Southeastern Regional Genetics Group - SERGG - This is a great resource for those in the South East. There are links to other genetic resources and conferences. http://www.ir.miami.edu/genetics/sergg/sergg.html

 

Council of Regional Networks for Genetic Services- CORN - This is a great resource for genetic resources in the US including sickle cell clinics and testing locations and conferences. CORN Guidelines for Follow-up of Carriers of Hemoglobin Variants Detected by Newborn Screening. http://www.med.nyu.edu/rgdc/corn2.htm

Link to the Globin Gene Server - a database of hemoglobin variants - This is an online version of the classic textbook of hemoglobin variants written by Dr. Heiusman

See a chart of hemoglobin electrophoresis patterns at http://family.georgetown.edu/welchjj/netscut/heme_onc/hemoglobin_electrophoresis.html

University of Rochester Hemoglobinopathies Brochures and Fact Sheets at http://www.urmc.rochester.edu/genetics/hemo.htm -This site has wonderful patient handouts on all of the common hemoglobinopaties and traits. This is a great resource for those involved with newborn screening and genetic counseling

March of Dimes - New fact sheet at http://www.modimes.org/HealthLibrary/334_609.htm and the fact sheet in spanish http://www.nacersano.org/centro/9388_9967.asp

CDC-Genetic Diseases - Sickle Cell Page - An excellent review of the chromosomal aspects of sickle cell, the US prevalence by state, and complication rates at: http://www.cdc.gov/genetics/hugenet/reviews/sickle.htm

The Genetics Program of the State of Georgia : Georgia Newborn Screening Manual for Metabolic Diseases and Hemoglobinopathies. This document is available in Portable Document Format (PDF), which is available immediately via download:   http://www.ph.dhr.state.ga.us/publications/newbornscreening/index.shtml

Newborn screening at http://www.newbornscreening.com/ A site with news about newborn screening in the US

The Children's Hospital Oakland Sibling Donor Cord Blood Program at http://www.siblingcordblood.org./  is a non-profit program, funded by the National Institutes of Health. We facilitate the collection, transportation and storage of umbilical cord blood free of charge for eligible families. Most of our collections are done for families who are caring for a child with a transplant-treatable disease (such as sickle cell anemia, thalassemia or leukemia) and are expecting another child.

THE GEOGRAPHY OF SICKLE CELL DISEASE: OPPORTUNITIES FOR UNDERSTANDING ITS DIVERSITY by Graham R. Serjeant, MD, FRCP at http://www.kfshrc.edu.sa/annals/143/rev9239.html

Link to: The Wellness Web Parent's Sickle Cell Information Page

Streaming Video -A New Era In Newborn Screening -  Saving Lives, Improving Outcomes  http://www.phppo.cdc.gov/PHTN/webcast/newborn/default.asp  course materials ay http://www.phppo.cdc.gov/dls/genetics/nbs_091902.asp

National Newborn Screening and Genetics Resource Center web site: GeNeS-R-US, (Genetic and Newborn Screening Resource Center of the United States). http://genes-r-us.uthscsa.edu/

DNA Interactive - A fun learning site about genetics at http://www.dnai.org/index.html

Genes and Disease at http://www.ncbi.nlm.nih.gov/books/bv.fcgi?call=bv.View..ShowSection&rid=gnd.preface.91

"Morgan" - A Genetics Tutorial  - Morgan is a multimedia tutorial that covers the basic principles of genetics with a molecular slant. Suitable for an advanced high school or introductory college biology class. http://morgan.rutgers.edu/MorganWebFrames/How_To_Use/HTU_frameset.html

Sickle Cell Article on Save Babies through Screening at http://www.savebabies.org/diseasedescriptions/sicklecell.php

University of Utah  - Genetic Science Learning Center - Sickle Cell Disease information http://gslc.genetics.utah.edu/units/newborn/infosheets/sicklecelldisorder.cfm

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Last modified: March 10, 2005