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SICKLE CELL DISEASE IN CHILDREN AND ADOLESCENTS:

DIAGNOSIS, GUIDELINES FOR COMPREHENSIVE CARE, AND CARE PATHS AND PROTOCOLS FOR MANAGEMENT OF ACUTE AND CHRONIC COMPLICATIONS  the Sickle Cell Disease Care Consortium (Arizona, Colorado, Georgia, Missouri, New Mexico, Tennessee, Texas, and Utah) Revised at the Annual Meeting of the Sickle Cell Disease Care Consortium, Sedona, AZ, November 10-12, 2001


SICKLE CELL DISEASE CARE CONSORTIUM

Robert F. Austin, MD

Suite 1160

6560 Fannin

Houston, TX 77030

713 440-6539

Howard A. Britton, MD

Santa Rosa Children's Hospital

519 W. Houston St.

San Antonio, TX 78207

210 704-2187

George R. Buchanan, MD

UT Southwestern Medical Center

5323 Harry Hines Blvd.

Dallas, TX 75390-9063

214 648-3896

Jesse D. Cohen, MD

333 East Virginia Avenue

Suite 210

Phoenix, AZ 85004

602 253-5993

Allie Cummings

Sickle Cell Anemia Program

Arizona Department of Health Services

1400 W. Washington

Phoenix, AZ 85007-2931

602 542-7344

Michael DeBaun, MD, MPH

Washington Univ. School of Medicine

660 S. Euclid Ave, Box 8208

St. Louis, MI 63110

314-286-1186

Donna J. Dixon, RN, MS

Colorado Sickle Cell Treatment & Res. Ctr.

Univ of Colorado Health Sciences Center

4200 E. 9th Avenue, Campus Box C-222

Denver, CO 80262

303 372-9074

Cathryn Echeverria

Manager, Health Services

1740 W. Adams

Phoenix, AZ 85007

602 542 2484

James R. Eckman, MD

Emory University

Department of Hematology/Oncology

69 Butler Street, SE

Atlanta, GA 30303

404 616-5982

Nkechi Eke, RN, BSN

Texas Department of Health

1100 West 49 Street, T-602

Austin, TX 78756

512-458-7111 ext. 2071

 

 

 

 

 

 

Leanne Embry, MA

Univ. of Texas Health Sciences Center

333 N. Santa Rosa St.

San Antoinio, TX 78207

210-704-2987

Beatrice Files, MD

Children's Healthcare of Atlanta

5455 Meridian Mark Rd.

Atlanta, GA 30342

404-257-3240

Ernest Fruge, PhD

Baylor College of Medicine

6621 Fannin St., MC3-320

Houston, TX 77030

832-824-4665

Beatrice E. Gee, MD

Morehouse School of Medicine

Department of Pediatrics

720 Westview Dr. SW

Atlanta, GA 30310-1495

404-756-1335

W. Keith Hoots, MD

M.D. Anderson UTHSC

6723 Bertner Ave.

Houston, TX 77030

713 792-6620

Donna Holstein, RN, BSN

Colorado Sickle Cell Treatment & Res. Ctr.

Univ of Colorado Health Sciences Center

4200 E. 9th Avenue, Campus Box C-222

Denver, CO 80262

303 372-9075

Lewis Hsu, MD, PhD

Emory University

Georgia Comprehensive Sickle Cell Center

80 Butler Street, Box 109

Atlanta, GA 30303

404-225-3559

John J. Hutter, MD

Department of Pediatrics

University of Arizona

Health Sciences Center

Tucson, AZ 85724

520 626-6527

Sarah Iden, MPH

University of Arizona Dept. of Pediatrics

P.O. Box 24-5073

Tucson, AZ 85724

520 626-5175

Peter A. Lane, MD

Colorado Sickle Cell Treatment & Res. Ctr.

Univ of Colorado Health Sciences Center

4200 E. 9th Avenue, Campus Box C-222

Denver, CO 80262

303 372-9070

Bill Letson, MD

Colorado Department of Health

4300 Cherry Creek Drive South

Denver, CO 80246

303 692 2424

Donald H. Mahoney, Jr., MD

Texas Children's Cancer Center and Hematology Service

6621 Fannin Street, MC 1410.00

Houston, TX 77030

832-822-4213

Marie Mann, MD, MPH

Genetic Services Branch

Division of Services for Children with Special

Health Care Needs

5600 Fishers Lane, Room 18A-19

Rockville, MD 20857

301-443-1080

Prasad Mathew, MD

University of New Mexico

Department of Pediatrics, ACC 3rd Floor

2211 Lomas Blvd., NE

Albuquerque, NM 87131

505 272-4461

F. John Meaney, PhD

Department of Pediatrics

Univ. of Arizona Health Sciences Center

1501 North Campbell

Tucson, AZ 85724

520 626-4180

Stefan T. Mokrohisky, MD

Kaiser Permanente

Department of Pediatrics

1375 E. 20th Avenue

Denver, CO 80205

303 861-3558

Brigitta U. Mueller, MD

Texas Children's Sickle Cell Center

6621 Fannin St., CC 1410.00

Houston, TX 77030-2399

832-822-4585

 

 

 

 

 

 

 

 

Michele A. Lloyd-Puryear, MD, PhD

Genetic Services Branch

5600 Fishers Lane, Room 18A-19

Rockville, MD 20857

301-443-1080

Charles Quinn, M.D.

UT Southwestern Medical Center

5323 Harry Hines Blvd.

Dallas, TX 75390

214-648-3896

Michael Recht, MD, PhD

Phoenix Children's Hospital

Hematology/Oncology

909 East Brill Street

Phoenix, AZ 85006

602 239-5785

Zora R. Rogers, MD

UT Southwestern Medical Center

Children's Medical Center of Dallas

5323 Harry Hines Blvd.

Dallas, TX 75390-9063

214 648-3896

Vivian Tsegah-Teye, BS, MPA

Arizona Department of Health Services

1740 W. Adams, Room 203

Phoenix, AZ 85007-2931

602 542-7309

Winfred Wang, MD

St. Jude Children's Research Hospital

332 N. Lauderdale

Memphis, TN 38105

901-495-3497

Gerald M. Woods, MD

Children's Mercy Hospital

2401 Gillham Rd.

Kansas City, MO 64108

816-234-3265

Other Contributors to This and Previous Editions

The authors of this manual gratefully acknowledge the following individuals who also contributed to the development of these materials.

Blanche P. Alter, MD

Anthony Cecalupo, MD

Elloise Coyne (Deceased)

Mende F. Davis, MA, MEd

Zoann E. Dreyer, MD

Vicky Enciso, MS

Michael Etzl, MD

Phillip Gear, MD

Airewele Gladstone, MD

Shannon Gillette

T. John Gribble, MD (Deceased)

Timothy Griffin, MD

Taru Hays, MD

Joyce Hooker

Marva Houston, RN, NP

Jesse Hutt, MD

Joseph Jarvis, MD, MPH

Rebecca Jasso

Cathy M. McManus, RN

Charlotte Morrison

Melanie Oblender, MD

Chin-Nan Ou, MD

Dale Anne Singer, MD

Ted Tarby, MD

Elizabeth Thompson, MD

Rebecca Vaughan, RN, BSN

Mae Wang, MD

Donald Wells, MD

Mae Wilborn, BSN, MAHS

Terry Wood, MD

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Last modified: November 01, 2002