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SICKLE CELL DISEASE IN CHILDREN AND ADOLESCENTS:
DIAGNOSIS, GUIDELINES FOR COMPREHENSIVE CARE, AND CARE PATHS AND PROTOCOLS FOR MANAGEMENT OF ACUTE AND CHRONIC COMPLICATIONS*
Peter A. Lane, George R. Buchanan, John J. Hutter, Robert F. Austin,
Howard A. Britton, Zora R. Rogers, James R. Eckman, Michael R. DeBaun, Winfred C. Wang, Prasad Mathew, Sarah Iden, Michael Recht, Jesse D. Cohen, Ernest Frugé, Leanne Embry, Lewis Hsu, Brigitta U. Mueller, Robert Goldsby, Charles T. Quinn, Marie Mann, and Michele A. Lloyd-Puryear for the Sickle Cell Disease Care Consortium*Revised at the Annual Meeting of the Sickle Cell Disease Care Consortium, Sedona, AZ, November 10-12, 2001 ( representing Arizona, Colorado, Georgia, Missouri, New Mexico, Tennessee, Texas, and Utah)
Supported in part by the Mountain States Genetics Network, by the Texas Genetics Network and Texas Newborn Screening Hemoglobinopathy Grant (Texas Department of Health), and by Project #5H46 MC00132 and a contract from the Maternal and Child Health Bureau (Title V Social Security Act), Health Resources and Services Administration, Department of Health and Human Services.
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PRINCIPLES OF CARE FOR CHILDREN AND ADOLESCENTS WITH SICKLE CELL DISEASE
DIAGNOSTIC TESTING FOR THE COMMON SICKLE CELL SYNDROMES
NEWBORN SCREENING FOLLOW-UP GUIDELINES
Follow-up of Infants with Probable Hemoglobin Disease
Follow-up of Infants with Probable Hemoglobin Trait
Follow-up Procedures for Infants with Hemoglobin Bart's
SICKLE CELL DISEASE -COMPREHENSIVE CARE
Routine comprehensive evaluations
ACUTE ILLNESS IN SICKLE CELL DISEASE:
CLINICAL CARE PATHS
OUTPATIENT EVALUATION AND MANAGEMENT OF FEBRILE ILLNESS
OUTPATIENT EVALUATION AND MANAGEMENT OF PAIN
INPATIENT MANAGEMENT OF VASO-OCCLUSIVE PAIN
ACUTE STROKE OR NEUROLOGIC EVENT
GENERAL ANESTHESIA AND SURGERY
HEMATOPOIETIC STEM CELL TRANSPLANTATION
TRANSCRANIAL DOPPLER ULTRASONOGRAPHY
A P P E N D I X
Sickle cell disease care consortium and Other Contributors