Videos " Being a Carrier for a Sickle Cell Disorder" and "Living with a Sickle Cell Disorder" available in French and Portuguese with accompanying leaflets. To order: send a bank draft for the full amount of £40.00 each including packing and postage.
At current exchange rates $140.00 would cover cost and postage and packing for 2
videos. Please send payment as drafts in sterling. Address to:
Bernice Burton, Service Manager/SC&T Genetic Nurse counsellor,
Sickle Cell & Thalassaemia Unit,
Plaistow Hospital, Samson Street,
London E13 9EH       O208 586 6291 

"Sickle Cell: The Forgotten Disease"
	Item #: BVL33285
	Copyright date: C2001
	ISBN Number: 0-7365-9269-5
Films Media Group: http://www.films.com/id/6501/Sickle_Cell_The_Forgotten_Disease.htm

This insightful program, narrated by George Strait, raises viewer awareness of how patients cope with the day-to-day pain, uncertainty, and stigma of sickle-cell disease through the cases of two African-Americans—pop singer T-Boz, spokesperson for the American Sickle Cell Association, and Infinity, a 4-year-old girl—and a 9-year-old Latina named Nina. Current research and experimental treatments are presented by Surgeon General David Satcher; national sickle-cell expert Lakshmanan Krishnamurti; John Wagner, head of gene therapy at the University of Minnesota; Griffin Rodgers, of the NIH; and others. A Discovery Channel Production. (46 minutes)

The cost  is $89.95.

Internet video  of: Innovative In Vitro Fertilization Techniques including preimplantation genetic diagnosis (PGD). The latest IVF techniques and focus on PGD, which can identify embryos with genetic defects that cause conditions such as sickle-cell anemia, Tay-Sachs disease, and cystic fibrosis. http://www.or-live.com/WFUBMC/1477/index.cfm?r=orlive

Best Alternatives, Inc., a not-for-profit educational multimedia company and producer of the television series Health Choices, today announces an educational awareness initiative to inform Americans about Sickle Cell Anemia and of the support and resources that are available.

Sickle cell anemia is a devastating disease that affects primarily African-Americans in this country. Management of this disease, particularly the treatment of pain, a primary symptom of the disease, runs headlong into prejudice, a lack of financial resources and difficult social and economic realities.

Health Choices has produced a one-hour documentary "Sickle Cell Anemia…Battling Pain," in association with the Department of Pain Medicine and Palliative Care at Beth Israel Medical Center, New York and its Chairman, Dr. Russell K. Portenoy. The program has the participation of distinguished Actor-Writer-Director Ossie Davis, who has worked for 50 years to educate all Americans about this serious disease. The purpose of this program is to increase awareness of the disease among patients and caregivers, health care professionals, affiliate organizations and social service agencies, special interest associations and the general public." The devastating impact of sickle cell disease is worsened immeasurably by the under treatment of pain, its cardinal symptom," says Dr. Portenoy. "This program highlights the unmet needs of those with sickle cell disease and explores the nature of under treatment and the therapies that are available to improve quality of life."

"Sickle Cell Anemia…Battling Pain" has been endorsed by the leading sickle cell associations: The Sickle Cell Association of America, the American Sickle Cell Anemia Association, the Georgia Comprehensive Sickle Cell Center at Grady Health System and the National Bone Marrow Transplant Link. The documentary will be presented at the 31^st Annual Convention of the Sickle Cell Association of America, September 24-27. There are plans to air the program on public television beginning in September as well as in February for Black History Month. It will be available for use as streaming video on the Internet and marketed as a resource for community outreach programs and discussions, both as a DVD and video, and even in the form of brochures and public service announcements. In addition, it is hoped that this effort will raise appropriate funds to produce a CME version of the documentary. This program is underwritten by Endo Pharmaceuticals, Medtronics, Ortho McNeil and Cephalon

"Sickle Cell Anemia…Battling Pain" is expected to be the first in a series of one-hour documentaries produced by Health Choices on important medical issues facing Americans. Gary Nenner, Executive Producer of Health Choices, is committed to producing documentaries that "inform, educate and inspire."

To watch this entire video using the free real player (available at http://www.real.com ) 

Click on the following link to watch this 58 minute video:

http://realaudio.service.emory.edu/ramgen/SOM/PA/PLATT/SICKLE/hcsickle03.rm

To order VHS copies of this video for $29.95, contact  Melissa Butler at 
MelissaBButler@aol.com or phone (203) 221-0888

Online Streaming Video

Get free Real Video Player Click Here

Your Genes your Health - an excellent animated site with tutorials about sickle red cells, genetics and a video of a patient interview on multiple topics. http://www.ygyh.org/ygyh/mason/ygyh.html?syndrome=sickle

SUNY Down state video streaming - Sickle Cell Disease 20 minutes http://138.5.102.103/ia/compressed%20movies/HealthCenter/SickleCellAnemia01/Upload%20to%20HTTP%20Server/SickleCellAnemia_T1.mov

Dying in the City of the Blues: Sickle Cell Disease and the Politics of Health Care in the South.by Keith A. Wailoo at http://programs.researchchannel.com/displayevent.asp?rid=1142

A Mutation Story - Malaria and Sickle Cell Disease on PBS at http://www.pbs.org/wgbh/evolution/library/01/2/l_012_02.html

Streaming Web Video Page  The Seventh Biennial National Symposium on 
Bone Marrow and Stem Cell Transplantation Saturday, October 14, 2000 Mark C. Walters, MD Childrens Hospital, Oakland Sickle Cell Disease and Thalassemia at http://www-med.stanford.edu/shc/txp/bmt/bmt-video.html

Meaning of Genetic Variation Video about sickle cell disease by the NIH at http://science.education.nih.gov/supplements/nih1/genetic/activities/activity2.htm

Advances in Sickle Cell, Speaker: Griffin P. Rodgers, M.D., chief, Molecular and Clinical Hematology Branch; deputy director, National Institute of Diabetes and Digestive and Kidney Diseases, National Institutes of Health 
Produced: July 31, 2001  http://programs.researchchannel.com/displayseries.asp?collid=67

CNN- Cord Blood Transplant on line video at http://www.cnn.com/HEALTH/9812/14/cord.blood.sickle.cell/

Sickle Cell Movie from the NIH Curriculum Suppliment, Human Genetic Variation, Copyright 1999 by the BSCS and videodiscovery, Inc. Video Courtesy of NIH, BSCS and Videodiscovery. See the genetics, sickle cell blood flow and complications. Click Here: Play

Sickle Cells blood flow in a sickle cell mouse Click Here: Play

Sickle Cells Kids Website  ( www.SickelCellKids.org )News Report  Click Here: Play

Sickle Cell March for the Cure Sept. 8 , 2002 Atlanta  17 min video Click Here: Play

Pain Management in The Georgia Comprehensive Sickle Cell Center Part 1 Click Here: Play

Pain Management in The Georgia Comprehensive Sickle Cell Center Part 2 Click Here: Play

Patient Education in The Georgia Comprehensive Sickle Cell Center Click Here: Play

Sickle Cell Pain Management Update 2003 - This is a 57 minute presentation by  James Eckman, MD, Medical Director of the Georgia Comprehensive Sickle Cell Center at Grady Health System Click Here: Play

Video Cast of the 30th Anniversary Conference of the American Sickle Cell Disease
Association in Washington DC Sept 2002 will play in  November 2002 at Urban Health Cast:  http://www.urbanhealthcast.com/

Sickle Cell Disease: Understanding the Dynamics of Today’s Changing Health Care Trends Webcast: University of South Alabama (USA)  Comprehensive Sickle Cell Center,  College of Medicine Video conference, with several lectures done July 24, 2002  Tuskegee University, Kellogg Conference Center at http://www.urbanhealthcast.com/sicklecell/index.html

Streaming Video -A New Era In Newborn Screening -  Saving Lives, Improving Outcomes  http://www.phppo.cdc.gov/PHTN/webcast/newborn/default.asp  course materials ay http://www.phppo.cdc.gov/dls/genetics/nbs_091902.asp

Sickle Cells Kids Website on TV News ( www.SickelCellKids.org )News Report  - Footage courtesy of WAGA News, New World Communications of Atlanta Inc. All rights reserved. Click Here: Play (You will need Real player to view)

Living with Sickle Cell Disease- a 27 minute VHS video produced by the Sickle Cell Trust and Dr. Graham Serjeant in Jamaica. $30, Address: 14 Milverton Crescent, Kingston 6, Jamaica, West Indies. Phone 876-970-0077 Fax 876-970-0074 email grserjeant@cwjamaica.com

This is an excellent patient perspective all should see. 

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An Excellent world wide perspective

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