Interactive Sickle Cell Resources on CD-ROM for Patients and Professionals - Entire Website also on CD-ROM with hyperlinked text and the Problem Oriented Clinical Guidelines

Price: $35 includes shipping and handling. Print and complete the order form below.

To see the tutorial without annimation CLICK HERE

To see the Problem Oriented Guidelines CLICK HERE

These are folders on the CD-ROM

1. The Database demo – this is a shell of the Access Database used in the Georgia Comprehensive Sickle Cell Center. You must own a copy of Microsoft Access 97 or 2000 to run or modify this database. It is designed to allow sickle cell clinics a start at programming their own database to help track clinical information. There is NO support for this, it is given as is with NO promises that it will work. You must have a working knowledge of Microsoft access to modify the database.
2. The Sickle Website – The SickleWeb directory contains a copy of the latest version of the entire sickle cell website including the latest in clinical guidelines in the Problem Oriented Clinical Guidelines for Sickle Syndromes. You must be on the Internet to view web links to other web sites. You must have a web browser such as Netscape Communicator or Internet Explorer to view these pages

3. Sickle Power Point – This section contains several power point slide shows to use for teaching patients, and professionals. You may modify these slides if you own Microsoft Power point 97 or 2000. A free power point player is included on the CD in the PowerPoint directory. 

The list of power point slide shows in this directory are:

• 8hourpain – the review of treating pain crisis for 8 hours in the sickle cell center allows 80% of the patients to go home.
• Diet – A teaching program about diet and fluids for sickle cell patients
• PedsPain1 – a introduction to pediatric pain management
• PedsPain2 – management of the difficult problems in pediatric patients
• CenterHx – a history of the development of the Georgia Comprehensive Sickle Cell center
• DesferolInst – A slide show about chelation therapy and using desferol
• Painassmnt – a review of the new JCAHO pain assessment standards and a new tool to use
• Nubain – the use of nubain for pain episodes.

4. Video

There is an AVI or MPG movie included, just click use my computer or explorer to open the Video folder and click on one these titles .They should play if you have a movie player installed on your computer. The video describes the patient education and pain assessment programs at the Georgia Comprehensive Sickle Cell Center in Atlanta.

JCAHO.mpg or JCAHO.avi

There is a FLASH demonstration of the new kid's website SickleCellKids.org

5. Tutorial

This is the narrated and animated sickle cell tutorial for patients, lay audience and medical staff. The instructions and main menu are contained in the presentation called Arunfirst.ppt

There are 4 presentations to view:

1. Normal blood – the physiology of blood, red cells and hemoglobin
2. Sickle Cell – The physiology of sickle hemoglobin, distribution, genetics, sickle trait, complications
3. Health Living – how to promote health and prevent sickle complications
4. Research – the latest in new developments

There is a whole presentation for public speaking titled SickleTalk.ppt this is ideal for computer presentations or printing slides. You have our permission to use this or print it.

5. Coloring books

There are two coloring books that can be printed and distributed and you have our permission to do so:

• Bobby Blood Cell – keep bobby from sickling
• Kesias Desferol Coloring Book – all about desferol chelation therapy

1. Pain Conference

These are two slide shows presented during our 2000 Sickle cell pain management Symposium. These are captured on our video of this symposium

• Pain Assessment – The new JCAHO pain Standards and tools to assess pain and mood
• Pediatric Pain Management – How to manage pediatric sickle cell pain
• Adult Pain Management – Management of adult pain episodes

 

System Requirements

IBM compatable computer with 2x CD-ROM drive, Program is Microsoft Power Point 97 and includes a viewer to run of f of the CD-ROM .Needs Windows 95 and a sound card. The website needs a browser to view (Netscape or Internet Explorer)

Send mail to aplatt@emory.edu with questions or comments about this web site.
Copyright © 1997 Sickle Cell Information Center
Last modified: November 15, 2001